Friday, April 29, 2011

Poor Guy

This is what I woke up to the other day. To say the least it was not a good day. I felt so bad for him. I held him for a good part of the day.
On a side note he had his 18 month appointment and weighed in at a hole whopping 20 lbs. Putting him in the less than 3% for his weight and 29 3/4 inches for height-3%.
I just realized I never have mentioned the name of his condition, because I could never pernounce it. It is called visceral hyperalgesia.
What is painless to most children feels excruciatingly painful to children with Visceral Hyperalgesia.
It is when an individual has increased sensitivity to pain in the visceral system of internal organs like the stomach, intestines, or pancreas. Normally, when one eats or drinks, the stomach and intestines stretch to accommodate the meal with no discomfort whatsoever. But in a child with Visceral Hyperalgesia, the mere act of filling the stomach or intestine with a small amount of fluid or food triggers the nerves in the gut to respond as if a painful stimulus has been introduced.
The good news is that most children grow out of it within 6-18 months. He has been on the medicine Neurontin for 6 months now and we are slowing taking him off of it. In hopes that he has grown out of it.

1 comment:

becky rigby said...

Poor little boy, what a sad picture. I'm glad he is doing better. I can't wait to party during our sleepover tonight woot woot.