Wednesday, March 12, 2014

Rare Disease Day

Happy Rare Disease day!
We may not have answers and we may never get them, but I wouldn't change a thing about this kid. We are so grateful to have his sweet spirit in our home. We truly are blessed. May we all find the joy in our journey as we love and care for these special spirits.

For those of you that may not know. Sawyer was originally diagnosed with Autism, but as he continued to grow it has become more apparent that it is so much more. He does have some behaviors and characteristics of autism, but there is an underlying condition. Because of this we have done genetic testing and still have no answers. We are not the only ones that do not have answers. There are families all over the world still searching for answers. Unfortunately they may never get them. Every day new advances are being made in genetic testing. Through these advances many families that did not have answers have gotten them after years and years of waiting.

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