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This is what I woke up to the other day. To say the least it was not a good day. I felt so bad for him. I held him for a good part of the day.
On a side note he had his 18 month appointment and weighed in at a hole whopping 20 lbs. Putting him in the less than 3% for his weight and 29 3/4 inches for height-3%.
I just realized I never have mentioned the name of his condition, because I could never pernounce it. It is called visceral hyperalgesia.
What is painless to most children feels excruciatingly painful to children with Visceral Hyperalgesia.
It is when an individual has increased sensitivity to pain in the visceral system of internal organs like the stomach, intestines, or pancreas. Normally, when one eats or drinks, the stomach and intestines stretch to accommodate the meal with no discomfort whatsoever. But in a child with Visceral Hyperalgesia, the mere act of filling the stomach or intestine with a small amount of fluid or food triggers the nerves in the gut to respond as if a painful stimulus has been introduced.
The good news is that most children grow out of it within 6-18 months. He has been on the medicine Neurontin for 6 months now and we are slowing taking him off of it. In hopes that he has grown out of it.
This is my attempt to get pictures of the kids on Easter.
The sun was in her eyes, but at least I tried.
I was so proud of this little one. She did have a look of shock on her face "like what did they just do to me?"
It broke my heart to watch them do it, but she didn't even shed a tear.
Sawyer likes to make lots of messes for mom. After he hits all the blocks out he proceeds to go to each block and scatter them more. So most of the day I have blocks scattered all over the floor. I guess kids have to be kids and you have to let them play. So much for a clean living room.
I asked Sadie yesterday if she wanted to feed Sawyer and of course being the helper she is she wanted to. She did awesome. I can definitely get used to this!

Sadie got her first professional hair cut the other day. I love it! Her hair has been so uneven and just not working for her. So I finally broke down and got the little hair she did have cut off. She did a great job at letting Natalie cut her hair.
Also she went to the dentist for the first time yesterday. She let them do all the x-rays and clean her teeth. The best thing about it was NO CAVITIES! I guess all that brushing pays off.
Ben volunteered to replace the engine in my step brothers car. He has been working on this off and on for a few months now. The other day he finally got the engine out. I'm so glad he is getting close to being done. I know he likes to do this kind of stuff, so I have been really patient about not having a place to put both cars in the garage.
He finally moves! Sawyer finally decided to crawl one day before his 16 month birthday. We have been working with him a lot. We have a physical therapist come once a month and we go to baby yoga once a week to help build his muscle strength. After all he has gone through it is so nice to finally see him enjoying life and progressing in his development. I love this little boy so much!